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2 – 4 Weeks

24 Oct

I heard back about the results from the study. The initial test did show that I appear to have been misdiagnosed–that I may indeed have adult onset┬áPompe disease and not Limb Girdle Muscular Dystrophy. The remainder of the tube of blood I gave has been sent off for gene sequencing to confirm the initial blood […]

Controlling My Thoughts

30 May

I was scrolling on Facebook the other day and saw a post from a sweet friend about moving into a new place. Her praise about the new place was that she now had a bathtub and was one happy pregnant lady! I read on to see a comment from another sweet friend who is also […]

Loved Beyond Measure

11 May

Charlotte, my older daughter, has been dealing with a little bit of separation anxiety. So much so that she has even been refusing to do the things she most enjoys if mommy is not right there with her. Now if I were to ask Charlotte to tell you how she knows her mommy loves her, […]