Where We Are Now

23 Aug

Our next step was to visit the MD clinic at Emory in Atlanta. The neurologists there examined me and told me they would like for me to have a muscle biopsy to try to understand what type of Limb Girdle MD I have. (For those unfamiliar with MD, there are many forms of MD and even many subsets among those main types–it can be confusing especially if you try to learn about it online!) It’s important to try to figure out the type of MD especially when considering exercise and therapy options. With some forms, exercise helps increase quality of life while in other forms exercise can actually heighten the progression of the illness.

So for now we are waiting for the biopsy to be scheduled. Once that is complete we can move forward with the MD clinic and learn more about what, if anything, I can do to increase quality of life as the disease progresses.

For any of you who may be reading who don’t know me (or haven’t seen me in a long time), I still function on a pretty normal level. Though, I do move slowly and have an awkward walk at times. I’m pretty sure I have lost the ability to run without falling flat on my face so I am in big trouble if there ever is a zombie apocalypse. (Excuse my very dry humor!) Getting up from sitting position is difficult at best and pretty much impossible without using my arms. If you see me sitting on the floor, most likely I won’t get up until you go away as trying to bring myself to a standing position is not a very pretty (or modest!) sight to see. =) There are other less noticeable things I won’t bore you with.

More important than those physical changes are the spiritual ones. I heard a line from a song today that said the following:

Shall we mourn as this world mourns
Or shall we rest in truth?
Though outwardly we waste away
Within we are renewed
The weight of glory far transcends
These momentary trials
Because He is risen
With Him we will rise

I don’t want to mourn this illness. And I especially don’t want to mourn like those who don’t know Christ would. Though my body may be slowly wasting away (and whose body isn’t?!?!), the important part is that inwardly I am renewed. This is a momentary trial, and with God’s grace and in the light of what He has prepared for me, I hope to use this illness as a means to know Him and trust Him in ways that I wouldn’t have been able to otherwise.

I hope to share more than just the physical journey with you as I write. My reason for writing is to share my journey of growth and rest in the Faithful One who gives us every good and perfect gift.

And yes, I do consider this struggle a gift. Anything that God would use to make me more like Him really is a gift.




6 Responses to “Where We Are Now”

  1. Autumn Gaydon August 23, 2013 at 9:53 am #

    Such a blessing to read your journey, my friend!! You have my daily prayers for strength. Love and miss you,


    • Kelli August 27, 2013 at 4:16 pm #

      Thank you so much Autumn. So good to hear from you! I “catch up” with you from time to time on your FB page. You have a beautiful family! And I am thrilled to hear about your church!

  2. Steph Taube August 23, 2013 at 1:32 pm #

    Love you Kelli

  3. Val August 23, 2013 at 7:25 pm #

    Such a powerful statement Kelli : “And yes, I do consider this struggle a gift. Anything that God would use to make me more like Him really is a gift.”

  4. Kelly (Yager) Hawkins August 30, 2013 at 10:53 am #

    You and your family will be in my thoughts and prayers!

    • Kelli August 30, 2013 at 10:57 am #

      So good to hear from you, too, Kelly! Like with Autumn, I keep up with your family on FB. So glad to see Mark is still doing photography!

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